Journal article
Experiences of prenatal diagnosis and decision-making about termination of pregnancy: A qualitative study
J Hodgson, P Pitt, S Metcalfe, J Halliday, M Menezes, J Fisher, C Hickerton, K Petersen, B McClaren
Australian and New Zealand Journal of Obstetrics and Gynaecology | WILEY-BLACKWELL | Published : 2016
DOI: 10.1111/ajo.12501
Abstract
Background: Advances in genetic technologies and ultrasound screening techniques have increased the ability to predict and diagnose congenital anomalies during pregnancy. As a result more prospective parents than ever before will receive a prenatal diagnosis of a fetal abnormality. Little is known about how Australian women and men experience receiving a prenatal diagnosis and how they make their decision about whether or not to continue the pregnancy. Aims: This qualitative study aims to describe parental experiences and examine how best to provide support after a prenatal diagnosis. Results: Individual in-depth interviews were conducted with 102 women and men approximately six weeks post-d..
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Awarded by Murdoch Children's Research Institute
Funding Acknowledgements
The authors wish to express their sincere thanks to the 75 women and 27 men who generously shared their stories as well as the prenatal genetic counsellors in Melbourne. This research was funded by grants from the Australian Research Council (ARC) Grant ID DP120100092, The Shepherd Foundation, Monash IVF Research and Education Foundation, the Murdoch Childrens Research Institute and is supported by the Victorian Government's Operational Infrastructure Support Program. Jane Fisher is supported by a Monash Professorial Fellowship and the Jean Hailes Professorial Fellowship which receives funding from the L and H Hecht Trust, managed by Perpetual Trustees Pty. Ltd. Jane Halliday is supported by a National Health and Medical Research Council (NHMRC) Senior Research Fellowship ID 1021252.